Tag: Charlie Hughes

Charlie Hughes: Parents Of Boy With Epilepsy Drop Nice High Court Challenge

March 28, 2021

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The parents of a three-year-old boy with severe epilepsy have dropped a legal challenge after guidelines on prescribing cannabis were ‘clarified’. Charlie Hughes went from having up to 120 seizures a day to fewer than 20, after receiving cannabis oil privately. Medical cannabis was legalised in 2018, but few NHS prescriptions have been handed out due to NHS guidance. A clarification to the guidance means specialist clinicians can prescribe medicinal cannabis where appropriate. – Read…

Parents of Toddler With Severe Epilepsy Seek Legal Review of Cannabis Oil Guidelines

August 16, 2020

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Charlie Hughes, 3, has rare condition called West syndrome, but NHS-approved medicines have been ineffective. The parents of a toddler with severe epilepsy are seeking a landmark judicial review of rigid guidelines that effectively prevent the NHS from prescribing medical cannabis oil, a substance that they say has allowed their son to live a much healthier life, to thousands of sick children. Charlie Hughes, 3, has a rare form of epilepsy called West syndrome, which…