Tag: NHS


Cannabis Oil: ‘I’ve Spent £34,000 To Keep My Epileptic Daughter Alive’


Tannine Montgomery says she has spent £34,000 and broken the law to keep her daughter alive. Six-year-old Indie-Rose, from Clare in Suffolk, has severe epilepsy and can have up to 50 seizures a month without medical cannabis oil. Since it was legalised two years ago, only a handful of NHS prescriptions have been issued. The Department of Health and Social Care says more research is needed before it can be routinely prescribed. – Read the…


Telford Girl’s ‘Miracle’ Response To Medical Cannabis


A seven-year-old with a rare form of epilepsy has made an “amazing” recovery after beginning a medicinal cannabis oil treatment, her family said. Sienna Richardson, from Telford, was diagnosed with Landau Kleffner syndrome. The family secured a prescription from a private practice for her – which her mother said had been a “miracle”. They are now campaigning with other families to ensure the treatment is more widely available on the NHS. – Read the entire…


NHS ‘Refuses’ Medical Cannabis for Children with Epilepsy


The NHS has repeatedly refused to fund medical cannabis for children with severe epilepsy, families have said. Three prescriptions are thought to have been written for “whole plant cannabis” oil since it was legalised two years ago, campaign group End Our Pain say. But at least 20 families are paying for costly private prescriptions after being turned down by the NHS, it said. The Department of Health and Social Care says more research is needed…


Mother Of Epileptic 15-Year-Old Urges Government To Provide Medical Cannabis On NHS


Charlotte Caldwell pleads with health secretary Matt Hancock to ‘intervene and stop this torturous ordeal’. The mother of a 15-year-old boy who can suffer from hundreds of seizures a day has called on the health secretary Matt Hancock to intervene and allow him a prescription for medical cannabis on the NHS. Charlotte Caldwell’s son Billy has severe epilepsy and has been accessing specialist cannabis oil from a private doctor through a temporary arrangement which runs…


Parents of Toddler With Severe Epilepsy Seek Legal Review of Cannabis Oil Guidelines


Charlie Hughes, 3, has rare condition called West syndrome, but NHS-approved medicines have been ineffective. The parents of a toddler with severe epilepsy are seeking a landmark judicial review of rigid guidelines that effectively prevent the NHS from prescribing medical cannabis oil, a substance that they say has allowed their son to live a much healthier life, to thousands of sick children. Charlie Hughes, 3, has a rare form of epilepsy called West syndrome, which…


Campaigners Call for More Rare Epilepsy Patients to Be Given Cannabis Oil Drug


A cross-party group of MPs has written to Health Secretary Matt Hancock demanding action. Health Secretary Matt Hancock was tonight urged to tear up red tape campaigners say is hampering prescriptions of medical cannabis for children with rare epilepsy. There have been no new NHS prescriptions for full-extract cannabis oil since the medicinal use of the drug was legalised more than 18 months ago, it emerged this month. Experts say strict guidelines make it difficult…


Parents’ NHS Cannabis Fight for Toddler Who Suffers 100 Epilepsy Seizures a Day


Two-year-old Charlie Hughes has a rare condition that causes severe seizures that seven different NHS treatments have failed to treat – but medicinal cannabis have halved his daily fits. The parents of a toddler with life-threatening epilepsy are fighting a landmark legal battle so he can be given medicinal cannabis on the NHS. Two-year-old Charlie Hughes has West syndrome, a rare condition that causes up to 100 spasms a day. He has tried seven different…